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Sponsorship Opportunities

For information on exhibition and sponsorship opportunities at the convention, contact Sharon Cordesse at scordesse@oreilly.com

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Indivo X: The Open-Source Personally Controlled Health Record Platform

Daniel Haas (Children's Hospital Boston)
Healthcare
Location: F151
Average rating: ***..
(3.33, 3 ratings)

Indivo (http://indivohealth.org) is a health record platform, developed by the Children’s Hospital Informatics Program (CHIP) in Boston, that empowers patients to take control of their personal health record. It is the “secure Facebook platform for personal health,” in that it enables the development of substitutable personal health applications through which patients view and annotate their data. And it is open-source: the platform code is publicly available, and developers are encouraged to drive Indivo app development.

Clayton Christensen, inventor of the concept of disruptive innovation, recently wrote in his book, The Innovator’s Prescription, “We cannot overstate how important PHRs are to the efficient functioning of a low-cost, high quality health-care system…We think that the Indivo system, or something like it is a good place to “

Indivo is deployed in multiple environments, including at Children’s Hospital Boston where the patient portal for all patients is at the core of the highly innovative Gene Partnership Project, recently covered in the Wall Street Journal. Our international open source community includes a wide variety of players, including academic institutions, software startups, individual developers, major telecoms, retailers like Wal-Mart, and technology companies like Intel and Microsoft.

The Indivo project began in 1998 and has been highly influential. Microsoft launched a very similar product, Healthvault, containing Indivo Open Source code. Dossia contracted with CHIP to adapt Indivo for use by millions of employees, and Google launched Google Health, a platform with similar architecture. The products pushed out by these software giants have had unusually low adoption rates, however, suggesting that patients are looking for something more. Indivo X, the latest incarnation of Indivo at CHIP, provides a substitutable, open source approach designed to enable patients to get the tailored health experience they seek. Indivo X continues to lead engineering innovation, health system process reform, and enforcement of the principles of individual autonomy and patient control. Indivo and the related www.smartplatforms.org project—a $15M open source, federally funded project to create an “app store” for health—are actively promoted by the Department of Health and Human Services and by the White House (see www.smartplatforms.org/challenge).

This talk will discuss the architecture and security implications of Indivo X, its place in the open-source community, its relationship to the federally funded open source www.smartplatforms.org project, and its prospects for future development. More information about our PCHR Infrastructures conferences, which spawned the Indivo ecosystem, is available online at http://www.pchri.org. Our platform conference where the White House announced the open source www.directproject.org is at www.ITdotHealth.org.

Subtopics:
  • Indivo Background: PCHR history and related projects.
  • Indivo Overview: functionality and high-level architecture
  • Indivo Architecture: Document Processing and storage
  • Indivo Security: Access control, sharing, and authentication
  • Implications: what Indivo can do, and how SMArt helps
  • Indivo and open-source: A perfect fit
  • Indivo and the future: where PCHRs are headed

Daniel Haas

Children's Hospital Boston

Daniel Haas graduated from the Harvard EECS program with a degree in Computer Science. He is now a software engineer and the Lead Architect of the Indivo X project at the Children’s Hospital Informatics Program in Boston.